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Wednesday, July 08, 2009

quickie update: appointments

we got in! to the Baton Rouge Clinic. in record time. our pediatrician said to expect a 4 month wait for the one she referred us to, and a 2-3 month wait for her partners. how bout August 5???? God is good! One of our prayers was that we would not have to wait long. So we were thrilled to be given a date less than one month away.

Yesterday was a day of people calling me back as well. Lots of great information. We got hooked up with the Tangi School System's early intervetion and they'll do an evaluation soon (when school starts back?) They seemed to be on top of their game and offer many free services, which we'll take!

One of the not so great things about any developmental delay is that most insurances dont cover diddly squat. So we're praying for that too.

I also heard back from SLU's speech/language/hearing clinic and got more information from them. Several folks have recommended them, and the cost is fairly minimal each semester. There's a "waiting list" but not first come/first serve, it has more to do with the patient's age/situation since it's a teaching environment. We are hoping they need a 3 year old with ASD! They also do an eval. there. So he'll be thoroughly evaluated :)

Prayers:

That Jordan wont be too overwhelmed with all these "new" faces/evals/therapies, etc. Remember, he's still Jordan and doesnt know what in the world is going on with all these doctors visits and specialist appts. He's also terrified of doctors offices and hospitals and it takes him a long time to feel comfortable. He cries and cries and just has a tough time. So we're praying the clinics are warm and inviting and that he's comfortable so he can be accurately evaluated.

Finances. Most of this stuff isnt free. And most of it isnt covered by insurance.

For Asah and I to make the best decisions for Jordan. I have learned what it means to be an "advocate" for him already. Wisdom comes from the LORD.........

I cannot thank everyone enough for the comments on this blog, emails, etc. It is so freeing to share this and not carry it anymore by ourselves. You are all so wonderful!

And you know I'll keep you posted!

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4 Comments:

Blogger The Rollins Family said...

You're an awesome mom! Question - When you come for Jax party, what day might you be leaving? I definitely will not be able to make a Thursday, because that would be 3 days I would have to take off of work. Anyway, we will get there Saturday evening, and would love to see yall sometime if you will still be there. (Crossing my fingers)

7/08/2009 7:17 AM  
Blogger Unknown said...

Ok so I should've read this one before commenting, looks like you've found some great sources. One thing I know from the early intervention center I worked at and the one here in Gainesville, they do scholarships b/c most are non-for-profit services so look into resources in your area to help with the finances

7/08/2009 9:04 PM  
Blogger Michael and Andrea plus Baby Dawg said...

HEy girl, know we are praying for you guys. I hated I missed getting to see you guys! I know Michael had such a great time catching up with Asah. Just so you know a my cousin Dylan who i'm really close to was diagnosed with Asperger's (high functioning form of autism) a few years ago. He's 13 now and doing awesome. I know yall are overwhelmed with information and advice right now but if you need anything I know my mom and aunt have tons of info. You guys are awesome and the Lord is so faithful. One of my favorites: Jeremiah 33:3 "Call to me and I will show you great and mighty things that you not."

7/09/2009 8:46 AM  
Blogger --Shelley said...

Yay! That is great. The BR Clinic is less than one mile from our house. We will not be here on Aug 5 but you are more than welcome to chill and rest at our house on that day or any other you have to come this way!

7/09/2009 5:06 PM  

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